Here is the latest on my quest for relief.
I saw my pain management physician yesterday. I've decided that I would really like him to primarily treat my headaches. He is young, innovative, takes my pain seriously and treats me as a peer....which I like. I hate when doctors have that holier-than-thou attitude and act so patronizing. Not only have I been dealing with this ailment for 7 years...I have spent countless hours researching signs, symptoms, causes, treatments, diagnostics...you name it. Plus...I am a nurse...I do have some medical background.
So while I told him I was really interested in him being my main "head" guy, he is encouraging me to at least consult one more neurologist. One that he has a pretty good repoire with and one that is usually on board with his plans of care. Which is what I need. I am so frustrated with doctors disagreeing with each other! I see it at work...I see it in my care...it's annoying. No wonder patients get so confused.
So tomorrow I am going to call and schedule an appointment with yet another new neurologist.
Dr. B. also scheduled me to have another MRI of the head just to be on the safe side. I do have a right sided temporal hemangioma, which has been stable for years and is unlikely to be the cause of my headaches.
I am also in the process of waiting for approval from my insurance company for an Occipital Nerve Stimulator trial.
As Dr. B. said...I might as well go ahead with the trial...if it doesn't work or I don't like it...I won't get the permanent...if I do...I will...as simple as that.
One question to my friends out there that have the stimulators...do you all have your leads placed at the occipital nerve and/or in the epidural space? I think he wants to try 4 leads on me if it gets approved...2 in each spot.
My decision to go forward with the trial is that I really would like to eventually eliminate the amount of medication I take, particulary pain medication. I am petrified of being dependant on them, if I'm not already.
Most of the large headache clinics I checked out had a "one size fits all" medication regimen they give to patients. I've done numerous med combos and I am not willing to do more.
So...the saga continues with waiting for approval from the insurance company.
Keep your fingers crossed, my friends!!!